For many transplant recipients, the journey is not just about receiving an organ—it’s about resilience, hope, and the generosity of those who step forward to give the gift of life. This story is an inspiring look into Sean Delaney’s path from early diagnosis to multiple transplants, highlighting the challenges, advancements in transplant medicine, and the unwavering support from family, friends, and even strangers.

Managing a Life-Altering Condition from Childhood

Living with kidney disease from an early age meant constant medical monitoring and surgical interventions. After undergoing necessary procedures as a child, including the removal of a ureterostomy in grade four, life became a cycle of regular checkups every three to six months. Traveling for medical appointments became routine, often by train between rural areas and larger medical centers. Despite the condition, life continued with a sense of normalcy, though kidney function steadily declined over time.

The Need for a Kidney Transplant

By Sean’s early twenties, it became clear that a transplant was necessary. At 27 years old, his kidney function had declined to below 20%. Thankfully, Sean’s brother, who was in medical school at the time, was tested and found to be a match. Due to the high likelihood of needing a transplant in the future, the procedure was done earlier than expected to avoid scheduling challenges with his brother’s medical school journey. This first transplant would become a life-changing event, offering a new lease on life for the next 21 years.

Navigating Dialysis and the Search for a Second Transplant

After more than two decades, the transplanted kidney began to fail, necessitating a return to dialysis. Initially, peritoneal dialysis (PD) was the chosen method, but complications arose, leading to a brief period on hemodialysis while a new PD catheter was placed. This cycle continued until a second transplant could be arranged. Working in the organ donation and transplant world allows you to meet like-minded individuals- and very passionate about this cause. 34 individuals, including donor coordinators, administrators, friends, and family members, stepped forward to be tested. The search for a new kidney seemed daunting as Sean was highly sensitized at this point (85% sensitized, or, only 15% likely to find a match in the general population).

An Unexpected Gift from an Anonymous Donor

After many failed matches, a chance connection changed everything. A woman named Brenda, who was looking to be an anonymous donor had been struggling to navigate the living donor system. She heard about the need for a kidney through a mutual acquaintance. Though the two had only met for coffee once, Brenda took it upon herself to proceed with testing. Within a week, a call confirmed that she was a perfect match. On October 7, just two days after the recipient’s birthday, she selflessly donated her kidney—just in time, as the living donor program shut down due to COVID-19 restrictions shortly after.

Life After the Second Transplant

Nearly five years have passed since the second transplant, and life has been filled with adventure and gratitude. Staying active has been a priority, with frequent hiking and camping trips, including taking his six-year-old grandson to the top of Tunnel Mountain recently. The ability to share these experiences and embrace an active lifestyle underscores the importance of organ donation and how it truly transforms lives.

Medical Advancements That Have Changed Transplant Outcomes

Over the years, policy changes and medical advancements have dramatically improved the transplant process. One of the most significant developments that Sean has seen, and had the ability to help establish, is virtual cross-matching. This allows HLA labs to analyze donor-recipient compatibility remotely through interprovincial information systems, speeding up the process and increasing the chances of finding a match anywhere in Canada. Another game-changing policy is the "willing to cross" initiative, which broadens the possibilities for highly sensitized patients who previously had limited donor options. These innovations have given more patients a fighting chance at a successful transplant.

Many people undergoing transplants may not realize the crucial role played by HLA labs. These lab technicians and directors work tirelessly behind the scenes to ensure the best possible donor matches. Despite their invaluable contributions, they often go unnoticed by patients or the general public.

Challenges and Gaps in Transplant Care in the Prairie Provinces

One of the major hurdles in transplant care, especially in the prairie provinces, is accessibility. Many patients are forced to travel long distances for specialized care, often feeling more connected to rural centers rather than large metropolitan hospitals. This distance poses logistical and emotional challenges for patients and their families. Additionally, there are gaps in support services for families who must relocate for extended periods during the transplant process, making it even more difficult for those already facing life-altering medical challenges.

A Future of Hope and Innovation

This journey is a testament to the power of perseverance, medical advancements, and the generosity of organ donors. While challenges remain, innovations in transplant medicine continue to provide new opportunities for those in need. Through advocacy, policy improvements, and continued research, the future of transplantation is bright. Every story like this one serves as a reminder of the incredible impact of organ donation and the importance of registering as a donor.

Are you a registered organ donor? You have the power to change lives. Talk to your family, spread awareness, and consider signing up today.

A Journey Through Transplantation: Overcoming Challenges and Embracing Life