Addison: A Journey of Hope
A Life-Changing Diagnosis
Addison McArthur was a healthy newborn. However, at just 20 days old, her parents noticed alarming symptoms: she was unusually cool to the touch, extremely pale, and had a sharp, unfamiliar cry. Concerned, they rushed her to Burnaby General Hospital, just a few blocks from home, where initial assessments suggested an infection.
Upon transfer to BC Children's Hospital, it became evident that Addison's heart was failing. After much discussion with the pediatric cardiologist, Addison was listed as the highest priority on the transplant list in Canada. Remarkably, less than 48 hours later, a suitable heart became available, and Addison underwent a successful transplant. After a challenging recovery, she was able to go home exactly four weeks after her arrival at the hospital.
A Profound Connection Through Organ Donation
Addison's mother, Elaine, reflects on the emotional complexities of their journey. The joy of Addison's second chance at life is intertwined with the profound gratitude and sorrow for the donor family who experienced an unimaginable loss. Audrey was Addison’s heart donor—just six days old when she passed. The two families have since had the pleasure of meeting and supporting one another. This duality underscores the deep connections forged through organ donation.
Living Life to the Fullest
When asked how receiving a transplant has changed her life, Addison explained that this is just her ‘normal’ life. “It hasn’t felt like a ‘before and after’ moment—it’s just my life. I was too young to remember anything else, so this is my normal. I try to live every day like it’s the best day ever.”
Through her lifelong journey, she has faced challenges, found strength in her family, and developed a deep appreciation for the gift she has received.
Addison’s Love for Movement
Addison’s active lifestyle is her way of showing appreciation for the gift of life. Her passion for movement has taken her across the globe to compete in two Canadian Transplant Games and four World Transplant Games—this summer she will be travelling to Dresden, Germany for her fifth World Transplant Games. She has won almost 30 medals between the Canadian and World Transplant Games. Thank you for representing Canada so proudly, Addison!
2023 World Transplant Games in Perth, medalling at swimming!
In addition to competing, Addison enjoys skiing and may even have a budding future in golf—though that might just be a leisure sport she shares with her father.
A Mother's Unexpected Journey
Elaine, Addison’s mother, was a reporter in her earlier career. Just before she got pregnant with Addison Addison, she met a little girl who was on dialysis, waiting for a kidney transplant from her father, but there were delays in the process. Elaine sat with the girl’s mom in the waiting room of the Pediatric Intensive Care Unit (PICU) as both her daughter and husband underwent surgery. Unbeknownst to her, just a few short months later, Elaine, her husband, and their extended family would find themselves in the same PICU, watching their own child fight for survival.
Today, Elaine is the Manager of Communications and Community Engagement with BC Transplant. As part of her role, she and her team raise awareness about organ donation and the importance of registering your decision.
The Reality of Organ Transplantation
Addison wants to clear up a common misconception about organ transplantation: it is not a cure, but another form of treatment. While it offers a second chance at life, it also entails ongoing medical care and management.
Advocating for pediatric organ donation is crucial. Many healthcare providers hesitate to bring up the conversation, fearing it may add to a family's grief. However, Addison’s family has learned that many donor families find solace in knowing their loved one’s legacy continues. Giving families the opportunity to make that choice is essential, as it empowers them during a time when so much feels out of their control.
The Gift of Life
At its core, organ donation is about giving life—not just to the recipient, but to the donor’s family as well. It offers meaning in the midst of loss and allows someone else to continue their journey. Addison’s story is a powerful testament to the impact of this gift, serving as a reminder of why organ donation matters and why conversations about it should never be avoided.
Addison and her mother, Elaine, August 2024
Are you a registered organ donor? You have the power to save lives. Take a moment to talk to your family and register today. #TalkToYourFamily #OrganDonation #GiftOfLife #DonateLife